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Tuesday Morning Update

I apologize for the lack of entry yesterday; I was home without intarwebs, because we have bought a flashy new computer, and are in the process of upgrading to real intarwebs access, instead of pokey ole dial-up.

This means we will be sporting a shiny new e-mail address soon; I will change the website contact info once we get it.

I was also home because my doctor (the good one) has upped my Lyrica dosage; she is excited that the Lyrica was having an effect (it was), so she upped the dosage to see if it would improve things even more, and whoa, groggy.  I needed a couple of days to adjust.  I'm still slightly loopy (plz to forgiveness of any tpyos), but I'm now mostly safe to drive, so I'm back at work.

(I refuse to talk politics, except to remind all y'alls to vote, because I can't.)

Despite the groggy, the Lyrica has me hopeful for the first time in ages; I've gone from needing at minimum 6 pain pills a day to managing with four, sometimes three and a half (I often take them in half doses).  I have to adjust carefully; the Lyrica takes away any physical craving for the pain meds, but it cannot stop withdrawal symptoms completely, and I found out Sunday night/early Monday morning that I cannot go 10 hours without any pain meds without having a bad withdrawal reaction.

I thought my skin was going to crawl off my body.  Yuck.

But I'm getting times when I'm completely pain-free, and if I can adapt to the Lyrica so that I'm not groggy and weird-feeling, this could be good.  My doctor thinks I will never be completely pain-free; the condition has gone on for too long to hope for complete recovery, she says.  But we're working towards the point of the pain being manageable without constant painkillers, and I can reserve them for breakthrough pain, rather than needing to take them constantly.

Boring, I know.  But I wanted to give people an update.  I'll be back to my usual cynical self tomorrow (no matter who wins.)

An update on something more of you might be interested in - I finished drawing out the last of the current set of nightcap embroidery patterns last night, and now am finishing up the instructions and historical notes.  I hope to have them ready to send to kass_rants in the next couple of weeks, just in time for Christmas shopping.  I know there's a man on your list who would love an embroidered nightcap.  *evil grin*


( 27 brains — Leave a chunk of brain! )
Nov. 4th, 2008 12:22 pm (UTC)
Good news! Good news all around! I'm so happy for you.

I dropped you an email yesterday, but I suspect it went to the old email address. When you have a chance, drop me a line with your new email address and I'll send it again. It's nothing urgent and if I don't hear from you, I'll tell you at Holiday Faire. But I thought you'd want to know before then.
Nov. 4th, 2008 01:07 pm (UTC)
You can email me at work if you like: laura(dot)mellin(at)amedd(dot)army(dot)mil

It's usually pretty reliable, but I'll remote check my old email. :)
Nov. 4th, 2008 01:12 pm (UTC)
Found it - reply forthcoming. :) *happy*
Nov. 4th, 2008 12:34 pm (UTC)
I'm so happy that you've found a medicine that works for you and reduces the need for pain meds.
Nov. 4th, 2008 01:05 pm (UTC)
Will said patterns be available for Holiday Faire? BTW, I will get you a list later today of what patterns need restocking.

Nov. 4th, 2008 01:08 pm (UTC)
Yes, I'm aiming for that. I'll look for your e-mail, but like I said, we're upgrading. I can still remotely access the old e-mail, but not for long. I'll be updating everyone with my new e-mail soon.
Nov. 4th, 2008 01:07 pm (UTC)
The Lyrica(TM)'s working? Fabulous!!! That is such good news. :-)

(You very likely will get over the grogginess. I'm guessing it'll work like the Topamax(TM) I'm on for migraines - when I first upped the dose I could barely drag myself out of bed but now the squirrel's back to bouncing around as per usual.)
Nov. 4th, 2008 01:38 pm (UTC)
That is very happy news to hear about your meds. I'm glad the Lyrica is working to minimize everything. Lurvely.
Nov. 4th, 2008 02:33 pm (UTC)
This is good news!
Nov. 4th, 2008 02:50 pm (UTC)
It is very good news. My max dosage on the painkilers is 6 per day according to my Rx, but I frequently took more than that for over a year (and reported it, but my previous doctor did nothing about it, which is why I'm not with that office any more). Getting doen to even 4 - 4 1/2 on a regular day and 3 on a good day is phenomenal.

I still can't do extra stuff, but the day-to-day expereince of pain has been lessened. It takes about 3 months for the Lyrica to take full effect, so we're waiting to see what happens. :)
Nov. 4th, 2008 02:54 pm (UTC)
I can't imagine what you go through, but I honestly hope this stuff works how you need it to. Life in pain sucks.

And, it slows down your fabulousness in costuming, I'll bet and that's just not acceptable.

Simply not. So, lah, I have spoken.

(Sorry, I think this is coffee withdrawal, or something...)
Nov. 4th, 2008 04:33 pm (UTC)
Actually, it doesn't slow me down much - I can't sit still, ever, so I take a "break" from one thing by doing another. :) I can't stand not doing something, so I adjust between things that use different muscles in my hands. It's rarely I'll just sit on the sofa - not matter how uncomfortable I am, I have to do something. It's actually soothing, and can help with the emotional aspects of dealing with the pain.

(I'm a weepy soul on the drugs - I cry at ads on TV and sniffle my way through Animal Cops and such.)

I am knitting a pair of very shaped fitted stockings in between working on patterns right now. I really can't relax from making things, but I can choose from a range of things to do, so it all works out without causing me too much pain. *productive*
Nov. 4th, 2008 03:00 pm (UTC)
Every now and then I get a spam email with the title "Imagine your life pain free..." and it actually brings tears to my eyes.

If this could actually happen for you (relatively, no one is completely pain-free)... well, that just takes my breath away :-)
(Deleted comment)
Nov. 4th, 2008 04:22 pm (UTC)
Oh, that sucks. It's really an anticonvulsant, it's only very recently that it's started to be prescribed for diabetic and non-specific neuropathy, so that may be why. It's in the same family as neurontin - have you tired that? Having said that, I had a horrible reaction to neurontin (depressed, didn't eat, constantly nauseated, lost 15 pounds), and cymbalta reports from friends who have taken it scare me.

I'm still waiting to see if the Lyrica has any side effects I can't handle. None so far. Slight weight gain, but I got it under control pretty quickly. Mostly, it makes me want to eat more, which I can control, so the weight gain reported is from that, I think.
Nov. 4th, 2008 04:28 pm (UTC)
I lose my mind every time the Aleve ads come on - those smug people who have their pain taken away by something that doesn't even make a dent on what I deal with. Grrrr. Bob is used to me yelling at the TV. :)

For some reason, I don't get the health spams - probably because I do most of my on-line stuff without using my e-mail address. I'm probably going to get more of them in the future, because we did one of those LifeScreen thingies where they test you for aortal aneurysms, and such. They're quite good - I found out that I have very little chance of ever getting osteoporosis.

...Mind you, I already knew that, since I have a steel endoskeleton encased in concrete. :)
Nov. 4th, 2008 04:44 pm (UTC)
Srsly. Aspirin. Gimme a break. I might as well eat a sugar pill, at least I'd enjoy it more.

I used to get all snarky and impatient with people who would offer me Tylenol or Advil when I had a headache. Then I came to my senses and realized that they honestly had no idea. None whatsoever. Now *I'm* the smug one every time someone offers me a (useless) analgesic :-)

Doesn't stop me from throwing things at the tv, though. Those jerks have it comin'.
Nov. 4th, 2008 05:12 pm (UTC)
Yeah. When I have one of those headaches, I usually try the Exedrine Migraine, and if I'm lucky, and I caught it soon enough, I'll manage. If not, hellooo, coedine chaser. I hate it, most especially since all even that does is dull the pain. Headaches are the worst - with arm pain, I can still sit on the sofa and work, but with a migraine, it's sleep or nothing (okay, well maybe throwing up a bit).
(Deleted comment)
Nov. 4th, 2008 04:25 pm (UTC)
It did, it did, and I have sent you a note, but it clearly hasn't arrived yet. I love the dress, and it's absolutely a gem of an example of the prairie-style '80s look! I also adore the little gift you sent with it - which you really didn't have to, seeing as you were doing me such a favour.

I hope what I sent in return is useful. *grin*
Nov. 4th, 2008 04:51 pm (UTC)
Speaking of patterns, would you be willing to tell me where the heck you got info for the blackwork cover that the Royal Ontario Museum has? (I noticed it was used as a basis for one of your coifs on Kass's site while I was looking to see which ones to put on my Christmas list- I think it's called the Theodora)
Nov. 4th, 2008 05:15 pm (UTC)
Hmmmmmm - I think that one comes from Wingfield Digby, but I'm not entirely sure. I know it's in one of my books - maybe the Mary Gostelow Blackwork? I'll have to look through my stuff at home and get back to you tomorrow.
Nov. 4th, 2008 05:33 pm (UTC)
That would be wonderful! :) It's not a huge rush (I'm currently trying to get ready for Pent at our Kingdom A&S), but seeing it on a coif pattern got me curious as it's next to impossible to get much info out of the ROM people. I intend to email and ask, but it's usually a case of what mood they're in, and unfortunately they're usually cranky.
It's currently on display btw, along with a few lace examples, an embroidered slip and a whole bunch of other neat just-post-SCA-period items (including a gorgeous stumpwork box and panel).
Nov. 5th, 2008 11:11 am (UTC)
Wow, that sounds cool - I have to try and check it out.

I did find my exemplar - it's a small (3x3") b&w photo in The Embroiderer's Story by Thomasina Beck. Unfortunately, the picture is all you get - like most of her books, there's no real discussion of the actual pictures, just an overview of the embroidery of the period crammed into one chapter. So, there's the picture, a small caption, and no other information on it, not even a picture credit/provenance. In fact, I had always liked it (which is why I redacted it), but I had no idea where it came from, so thank you!
Nov. 5th, 2008 01:25 pm (UTC)
Hmmm, I think I may have actually looked at that book- though if she doesn't actually give much info on them, it could be why I don't remember much about it! I'll definitely have to take another look at it soon. Thanks for looking it up for me- I can't believe I never knew something this amazing was sitting around in my own city!

The piece itself is of course quite worn, but gorgeous with the gold spangles on it. After finally seeing actual pieces of embroidery, I bow down to those artisans- the sheer tinyness of the stitching is amazing! (and the closest linen I've got, which is 32 count, doesn't even come close to the fineness of the fabric used since the fibres are much thicker than the pieces on display, no wonder I have issues with proper coverage on my pieces!)
Unlike the items in the drawers, the cover is in a large display case and I think I was able to get a not too bad picture of it. No flash allowed of course, and all I had was a cellphone at the time since I wasn't expecting any Renaissance stuff (I was there to see Marie Antoinette's dress and to just generally check out the new textile gallery, which they haven't had for 20 years or so). If it turned out okay I can send it to you via the email on your website (I may also revisit the museum with my actual camera again sometime since I want photos of that gorgeous stumpwork box, drool!)
Nov. 5th, 2008 05:28 pm (UTC)
Spangles? Hmmmm. You might want to check the pattern again - Theodora is the one with the turkeys and other birds on it, and I don't remember spangles.

Check Kass' site again and see if it's actually that one.

Of course, the pic I used was b&w, so it just might not have shown the spangles...
Nov. 5th, 2008 06:15 pm (UTC)
Hmmm, could be- I was browsing through all of them and may have gotten the name wrong. I'll have to have both images in front of me to be sure. ('course, it could also be that the ROM has another cover with a totally different design on it!)
Nov. 4th, 2008 05:36 pm (UTC)
This news is not boring it is fantastic and for the rest of us of who live with chronic illness it is also encouraging!
Nov. 5th, 2008 01:13 am (UTC)
How wonderful is that! I don't have that kind of chronic pain, but I've always got a headache. This migraine is going on 1.5 weeks now. :-( At least it's not too bad.
( 27 brains — Leave a chunk of brain! )

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