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o, hai.

Yesterday was a day of contrasts. 

Bob drove me all the way up to the other side of Baltimore to Good Samaritan Hospital, where I had an EMG, which is super painful (as in tears rolling down my cheeks painful) for me. It showed no nerve damage - good news and bad news, in that while there is no nerve damage (most particularly in my neck, which is where the one doc kept telling me it was), we still don't know what in the fuck is up. The term "myalgia" was used.

When the doctor uses the term "myalgia", you know they don't know what's wrong; "myalgia" simply means "unidentified muscle pain", much like "neuropathy" means "unidentified nerve pain".

So I have moved from "neuropathy" to "myalgia".

After the fun of the EMG, I found I had lost about three days worth of painkillers - apparently, my pill case fell out of my purse. The only time I pulled my keys out without looking was in front of Staples (where I was copying coif patterns), so we went back there, but the odds of someone turning it in were pretty low, and we did not find it. I hate to think this, but the odds are high that someone found the pill case, and thought "cool! I can get high!".

Today, my arms hurt like a son of a bitch, especially the right one, since they only did the dig-the-needle-into-your-arm-electrify-it-and-wiggle-it-around-until-the-patient-cries test on the right. Since they found nothing - nothing! not neck, not shoulder, not elbow, nothing! - wrong, they spared me the same test on the left. I am grateful for that - especially since I'm now short pills at a time when I need extra.

I was a total bitch about all of this. Bob was extremely cool about it all, and took me to the movies to cheer me up, where we saw "Prince Caspian". I liked it, but liked even more that there was only one other couple in the theater, and they were grown-ups. Fabulous movie experience (and I totally want Susan's blue dress).

I also cheered myself up with a totally cute manicure - I use false nails, usually in a French manicure that works discreetly for events, but is easy to maintain. Every now and then, I am seduced by some of the more interesting designs, and I am currently wearing a design very like the one all the way on the left, but with a single rose and a lacy design along the tips.  It's teh cyoot.

Lastly, I wish I were here:

The view from my room (roughly):


( 24 brains — Leave a chunk of brain! )
May. 29th, 2008 02:58 pm (UTC)
Did the doctor say FIBROmyalgia or just myalgia?
May. 29th, 2008 03:21 pm (UTC)
just myalgia.
May. 29th, 2008 03:43 pm (UTC)

Sucks...sorry to hear they still can't resolve the issue.
(Deleted comment)
May. 29th, 2008 03:46 pm (UTC)
Thanks - I cringe from handshakes and touches from strangers, because they like to do odd things like grab my upper arms, which is *agonizing*.

May. 29th, 2008 03:05 pm (UTC)
I'm sorry to hear about them still not knowing how to treat your pain. But Bobs make everything better. I'm glad you have one too. =)
May. 29th, 2008 03:45 pm (UTC)
Bobs are a fine fine thing. :)
May. 29th, 2008 03:39 pm (UTC)
Ooooh, I can sympathize. I had EMGs on both hands and forearms when I was in the middle of my bout with carpal tunnel about 10 years ago. The poor neurologist was also a friend of mine and he looked like HE was about to cry when I started bawling in the middle of it from the pain.

I hate to say this, but it takes a couple of days for the nerves to calm down.
May. 29th, 2008 03:45 pm (UTC)
I know - I've had these before. This is why I had the foresight to ask Bob to drive me, and not try to drive myself. :)
May. 29th, 2008 04:00 pm (UTC)
I HATE EMGs with a passion. I sympathize greatly and if you ever want to to swap evil EMG tech stories, I'm pretty easy to find. :-)

Drink lots of willow tea and hopefully someone will figure this out soon.
May. 29th, 2008 04:16 pm (UTC)
The tech and the doctor were both actually awesomely nice, as evidenced by not wanting to put me through any more pain than they had to - it's just a painful test whichever way you slice it, unfortunately. :(
May. 29th, 2008 04:54 pm (UTC)
I'm glad you got a decent one. Hopefully, they won't have to do this again. Have they done an MRI? CT scan? Sorry if I'm asking too much. I've been in the "but what's wrong with me (physically)?" situation one to many times and I know some docs don't bother running all the tests they should. Maybe one of those body scans? At the very least, you are in a great area to get sick in with all the different nationally renown research hospitals about. :-) Hugs and hot tea!
May. 29th, 2008 04:13 pm (UTC)
EMGs *SUCK*. I cleared the waiting room during my first one (back when I had RSDS), as folks blanched and fled at the sound of my screams. :(

Unfortunately, 'myalgia' tends to get brushed off more than 'neuropathy', so you might get even less response from folks now.

While I'm glad they didn't torture you by doing both arms, I'm a bit surprised, since the pain in one arm could be referred pain from actual nerve issues in the *other*. Not fun, but true.

Have you considered stellate ganglion nerve blocks, as the pain may well have gone centrally mediated by now? Not a suggestion, obviously, as every case is different, but a series might be worth thinking about bringing up with your doctor.

Good luck regardless!!!!
May. 29th, 2008 04:24 pm (UTC)
They did the initial "shocking the arm" test on both arms and got no abnormal response at all, which is why they chose to skip the second one. Since the pian is evenly distributed throughout both arms, the two things they wanted to look at were radial nerve damage, and neck (disk) damage, and found nothing. He wasn't blowing me off at all - both the doctor and the other doctor (he was a doctor not a tech) who did the tests were awesomely helpful and concerned about me.

He actually thinks it might be skeleto-muscular, and a result of overwork. This was one test - my doctor will probably go through a bunch before she gives up on me. The previous doctor said "it's in your neck" and refused to consider anything else after looking at one x-ray, so I basically see a NP for my pain Rx, and see my new doctor for treatment.

Thanks for the thoughts. :)
May. 29th, 2008 04:38 pm (UTC)
So sorry to hear you had to go through this but am very happy you have Bob. And I can sympathize with the loss of meds, I have an artifical hip and have had rounds of meds that were the difference between walking or not that day. My hubby was a rock too. Let's hear it for the good ones!
May. 29th, 2008 04:59 pm (UTC)
I'm so sorry you're having to deal with so much pain. :(

Glad that Bob was there to help out and be your rock and a distraction. Sal's the same way... we take turns keeping each other going. I think that's what it's all about. :)
May. 29th, 2008 05:46 pm (UTC)
So sorry, love
Wish I could do something, but I am glad Bob was there for you.
May. 29th, 2008 06:07 pm (UTC)
:-( Alas, poor you too!
May. 29th, 2008 07:45 pm (UTC)
gentle hugs in the wake of nasty, essential doctor's visit.

The nails sound very cute.

hope you get to feeling better soon!
May. 29th, 2008 08:35 pm (UTC)
I'm so sorry - all that pain and still no diagnosis!
Kyneburh has a great pain specialist person - I'll see if I can get the info in case another opinion is a useful option.
May. 29th, 2008 09:15 pm (UTC)
gentle hug!
May. 29th, 2008 10:08 pm (UTC)
Ach - sorry if I might have been over-exuberant Saturday.
Jun. 2nd, 2008 09:44 am (UTC)
You were fine. :)
May. 30th, 2008 03:26 am (UTC)
Feel better soon.
May. 30th, 2008 05:30 am (UTC)
Ugh, I'm so sorry. I really hope they can figure something out for you eventually -- or at the very least get your pain balance right!
( 24 brains — Leave a chunk of brain! )

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